Blog

Hello World! The past month or so has been interesting. Overall, Gideon has had both medicine bottles most days. It seems that this annual roller coaster will be ending soon. There are still fluctuations as noted below. His OT has mentioned that he does seem looser on the newer dosage and he sat up very […]

Hello World! For my sanity and hopefully for the ease of reading, I have broken up Gideon’s progress by day below. In other news, since there is nowhere for special needs kids to really get out and play in our area, we have decided to turn our yard into a play area for both Gideon […]

Hello World! Hope everyone is doing well! We have been riding the end of Gideon’s seasonal roller coaster. On Sunday, January 28th, Gideon did not have Miralax for a few days and got really constipated. Although children with CP may have a higher tendency toward constipation than other children, Baclofen increases the risk of constipation […]

Hello World! Sorry that it has been so long! I have been away due to the re-emergence of the last sinus infection and Gideon’s winter roller coaster medication/sleep schedule. Gideon has been taking his medications more regularly. He still has days where he only takes his meds once per day. As a result, we have […]

Hello World! Hope everyone had a wonderful holiday season! The toys we chose for the holidays were a hit! Gideon loved the fishing set and drums, especially. Gideon has remained on his rollercoaster of only taking his meds once a day. We have tried, again, to reset his schedule to no avail. So, we are […]

Hello World! To follow up Gideon’s therapeutic path, his PCP has ordered an intensive evaluation from PT, OT, and SLP. Their evaluation will be used to help us build a therapeutic schedule for Greg and me to follow. This would help us keep a consistent therapeutic schedule regardless of what happens with home therapy visits. […]

Hello World, As mentioned last week, we set his night time dosage to 16mg to balance the day and night doses before increasing his daily dosage. He did very well with this. So, Monday, one week after his evening dosage change, we increased his daily dosage to 24mg to total 40mg/day (24mg AM and 16mg […]

Hello World! Gideon has had a wonderful week. While he is still having those fun cycles, he has not missed any more medicine. He has begun to really work toward crawling, standing, and eating. He has been much more vocal and giggly. We have decided to increase his dosage slowly. Since his last dosage was […]

Hello World! Over the last few days, I have begun to think about a small increase in dosage for Gideon. We will discuss this with his therapist this week. He seems to have acclimated and seems eager to move forward with his abilities. Yet, as his parents, we want to be sure that he is […]

Hello World! It has been an interesting few days. To explain, I will have to give some background. If you aren’t familiar with cerebral palsy, you may not know that it’s a spectrum, in a sense. It is a blanket term for brain damage that shows one (or some combination) of a few different sets […]